The ERN ReCONNET webinar series
(Pour la version française, cliquez ici)
The reference center RESO Bordeaux is part of, the European reference network for rare and complex connective tissue diseases and musculoskeletal diseases, ERN ReCONNET. One of the missions of the ERN ReCONNET is to improve knowledge on rare connective tissue diseases.
The information from the ERN ReCONNET is designed for both the medical community as well as for patients and their families.The aim is to improve the diagnosis and management for connective tissue diseases and to empower patients.
Thus the ERN ReCONNET regularly organizes webinars:
- for healthcare professionels (HCP)
- for patients
- on transversal topics.
Participation in the webinars is free and open to anyone interested, simply register via the link displayed at the bottom of the webinar. In general webinars are held on Wednesdays at 16h CET (exceptions are possible). The recordings of past webinars can be viewed on the ERN ReCONNET Youtube channel.
The ERN ReCONNET webinar calendar
| Date | Time | Public | Titel | Speaker |
|---|---|---|---|---|
| 13 Décembre 2022 | 15h | HCP | Treatment of thrombotic APS Video: https://www.youtube.com/watch?v=7jc7SiP5BsA | Maria Tektonidou (University Hospital of Athens) |
| 21 Décembre 2022 | 17h | Transversal | Adherence to therapy in rare and complex diseases Vidéo: https://www.youtube.com/watch?v=9c_dN7lsQD0 | Rosaria Talarico (University Hospital of Pisa) |
| 18 janvier | 18h | HCP | Fatigue in lupus Video: https://www.youtube.com/watch?v=7jc7SiP5BsA | Laurent Arnaud et Lou Kawaka (CHU Strasbourg) |
| 22 février | 16h | HCP | IgG4 related disease: a challenge in the diagnosis Video: https://www.youtube.com/watch?v=6H2p8MNBTA0 | Emanuel Della Torre (Vita-Salute San Raffaele University, Milan) |
| 22 février | 17h | patients | Newer treatments in SLE Video: https://youtu.be/zFaUpPTov1s | Maarten Limper (University Medical Center Utrecht) |
| 1 Mars | 13h | HCP | How we treat challenging cases of Antiphospholipid syndrome (APS) Video: https://youtu.be/JQtBE-qhjOE | Savino Sciascia (A.S.L. Torino – Hub S. Giovanni Bosco), Luca Moroni (San Raffaele Scientific Institute, Milan) |
| 8 Mars | 16h | HCP | Coping with Mixed Connective Tissue Disease (MCTD) Video: https://youtu.be/dFkIZVgGvf8 | Ilaria Bini (Psychologist), Vera Guimarães (ePAG advocate) |
| 15 Mars | 16h | Transversal | How can I improve my adherence to treatment? Video: https://youtu.be/806A5M2Frns | Rosaria Talarico (University of Pisa) |
| 20 Mars | 17h | Patients | Discordance between patients and clinicians and health related quality of life Video: https://youtu.be/Z6q5l0nn1Sk | Marta Mosca (University of Pisa), Jeanette Andersen (ePAG advocate, Lupus Europe) |
| 29 Mars | 16h | Patients | Pregnancy and Antiphospholipid syndrome (APS) Video: https://youtu.be/UAHNjQ8uyfw | Angela Tincani (University of Brescia), Silvia Aguilera (Asociación Española Síndrome Antifosfolipídico) |
| 5 Avril | 16h | HCP | Joint hypermobility in children Video: https://youtu.be/isz8bMm1eM4 | Marco Castori (Fondazione IRCCS Casa Sollievo della Sofferenza) |
| 12 Avril | 16h | Transversal | The oral component of Sjögren’s disease Video: https://youtu.be/EWBWi-Jrmag | Arjan Vissink (University of Groningen) |
| 19 Avril | 16h | HCP | Sjögren’s essentials Video: https://youtu.be/GciVlJxcbjQ | Vasco Romão (Centro Hospitalar de Lisboa Norte) |
| 26 Avril | 16h | Patients | Inflammatory Myopathies and physical/social and working activities Video: https://youtu.be/wYLSgfaR5wU | Ilaria Galetti (ePAG advocate), Jiri Venkosky (Charles University Prague) |
| 3 Mai | 16h | HCP | Signs and symptoms of rare connective tissue diseases (rCTDs) – when to refer to the rheumatologist? | Cristina Pamfil (County Emergency Clinical Hospital, Cluj) |
| 4 Mai | 16h | Patients | How to explain undifferientiated connective tissue disease (UCTD) to my family and friends Video: https://youtu.be/fASSf3Fvjxw | Luca Iaccarino (Azienda Ospedale Padua), Vera Guimarães (ePAG advocate) |
| 10 Mai | 16h | Patients | Introduction to Relapsing Polychondritis (RP) and how to explain RP to my family and friends Video: https://youtu.be/prVvaYzpdx0 | Lisa Matthews (ePAG advocate), Oliver Sander (Universitätsklinikum Düsseldorf) |
| 17 Mai | 16h | HCP | Diagnosis and classification of Systemic sclerosis (Vanessa Smith), Present and future challenges (Marco Matucci Cerinic) Video: https://youtu.be/0O65omRtZws | Vanessa Smith (University Hospital Ghent), Marco Matucci Cerinic (Azienda Ospedale Universitaria Careggi, Florence) |
| 24 Mai | 16h | Patients | IgG4 related disease: a patient experience Video: https://youtu.be/M48K3IsSNik | N/A |
| 7 juin | 19h | Patients | EULAR 2023 debrief for people living with lupus | Laurent Arnaud (CHU Strasbourg) and Jeanette Andersen (Chair of Lupus Europe) |
| 14 Juin | 16h | HCP | Introduction to different subtypes of Idiopathic inflammatory myopathies(IIM) Video: https://youtu.be/DnDzpHPJv14 | Alain Meyer (Hôpitaux Universitaires de Strasbourg), Ingrid Lundberg (Karolinksa Institutet) |
| 21 Juin | 16h | Patients | Postponed to a later date | |
| 28 Juin | 16h | HCP | Mixed Connective Tissue Disease (MCTD) (https://us02web.zoom.us/webinar/register/WN_b3OrCENBSnyARvm8I3ix_g) | Benjamin Chaigne (Assistance publique – Hôpitaux de Paris), Kevin Chevalier |
| 5 Juillet | 16h | Patients | What is Antiphospholipid syndrome (APS)? How can I explain it to my family and friends? (https://us02web.zoom.us/webinar/register/WN_k-xARWKSQUau_XWKfWsJPQ) | Ricard Cervera (Hospital Clínic de Barcelona y Hospital de Sant Joan de Déu), Silvia Aguilera (ePAG advocate) |
| 12 Juillet | 16h | HCP | What are the pitfalls and red flags of Relapsing Polychondriti (RP) to be considered by the General Practitioner / Health Care Professional? | Laura Damian (County Emergency Clinical Hospital Cluj), Camelia Bucsa (ePAG advocate) |