The ERN ReCONNET webinar series

The ERN ReCONNET webinar series

(Pour la version française, cliquez ici)

The reference center RESO Bordeaux is part of, the European reference network for rare and complex connective tissue diseases and musculoskeletal diseases, ERN ReCONNET. One of the missions of the ERN ReCONNET is to improve knowledge on rare connective tissue diseases.

The information from the ERN ReCONNET is designed for both the medical community as well as for patients and their families.The aim is to improve the diagnosis and management for connective tissue diseases and to empower patients.

Thus the ERN ReCONNET regularly organizes webinars:

  • for healthcare professionels (HCP)
  • for patients
  • on transversal topics.

Participation in the webinars is free and open to anyone interested, simply register via the link displayed at the bottom of the webinar. In general webinars are held on Wednesdays at 16h CET (exceptions are possible). The recordings of past webinars can be viewed on the ERN ReCONNET Youtube channel.

The ERN ReCONNET webinar calendar

13 Décembre 202215hHCPTreatment of thrombotic APS
Maria Tektonidou (University Hospital of Athens)
21 Décembre 202217hTransversalAdherence to therapy in rare and complex diseases
Rosaria Talarico (University Hospital of Pisa)
18 janvier 18hHCPFatigue in lupus
Laurent Arnaud et Lou Kawaka (CHU Strasbourg)
22 février16hHCPIgG4 related disease: a challenge in the diagnosis
Emanuel Della Torre (Vita-Salute San Raffaele University, Milan)
22 février17hpatientsNewer treatments in SLE
Maarten Limper (University Medical Center Utrecht)
1 Mars13hHCPHow we treat challenging cases of Antiphospholipid syndrome (APS)
Savino Sciascia (A.S.L. Torino – Hub S. Giovanni Bosco), Luca Moroni (San Raffaele Scientific Institute, Milan)
8 Mars 16hHCPCoping with Mixed Connective Tissue Disease (MCTD)
Ilaria Bini (Psychologist), Vera Guimarães (ePAG advocate)
15 Mars16hTransversalHow can I improve my adherence to treatment?
Rosaria Talarico (University of Pisa)
20 Mars17hPatientsDiscordance between patients and clinicians and health related quality of life
Marta Mosca (University of Pisa), Jeanette Andersen (ePAG advocate, Lupus Europe)
29 Mars16hPatientsPregnancy and Antiphospholipid syndrome (APS)
Angela Tincani (University of Brescia), Silvia Aguilera (Asociación Española Síndrome Antifosfolipídico)
5 Avril16hHCPJoint hypermobility in children
Marco Castori (Fondazione IRCCS Casa Sollievo della Sofferenza)
12 Avril16hTransversalThe oral component of Sjögren’s disease
Arjan Vissink (University of Groningen)
19 Avril16hHCPSjögren’s essentials
Vasco Romão (Centro Hospitalar de Lisboa Norte)
26 Avril16hPatientsInflammatory Myopathies and physical/social and working activities
Ilaria Galetti (ePAG advocate), Jiri Venkosky (Charles University Prague)
3 Mai16hHCPSigns and symptoms of rare connective tissue diseases (rCTDs) – when to refer to the rheumatologist?Cristina Pamfil (County Emergency Clinical Hospital, Cluj)
4 Mai16hPatientsHow to explain undifferientiated connective tissue disease (UCTD) to my family and friends
Luca Iaccarino (Azienda Ospedale Padua), Vera Guimarães (ePAG advocate)
10 Mai16hPatientsIntroduction to Relapsing Polychondritis (RP) and how to explain RP to my family and friends
Lisa Matthews (ePAG advocate), Oliver Sander (Universitätsklinikum Düsseldorf)
17 Mai16hHCPDiagnosis and classification of Systemic sclerosis (Vanessa Smith), Present and future challenges (Marco Matucci Cerinic)
Vanessa Smith (University Hospital Ghent), Marco Matucci Cerinic (Azienda Ospedale Universitaria Careggi, Florence)
24 Mai16hPatientsIgG4 related disease: a patient experience
7 juin19hPatientsEULAR 2023 debrief for people living with lupusLaurent Arnaud (CHU Strasbourg) and Jeanette Andersen (Chair of Lupus Europe)
14 Juin16hHCPIntroduction to different subtypes of Idiopathic inflammatory myopathies(IIM)
Alain Meyer (Hôpitaux Universitaires de Strasbourg), Ingrid Lundberg (Karolinksa Institutet)
21 Juin16hPatientsEverything you wanted to know about Ehlers-Danlos SyndromePostponed to a later date
28 Juin16hHCPMixed Connective Tissue Disease (MCTD)
Benjamin Chaigne (Assistance publique – Hôpitaux de Paris), Kevin Chevalier
5 Juillet16hPatientsWhat is Antiphospholipid syndrome (APS)? How can I explain it to my family and friends?
Ricard Cervera (Hospital Clínic de Barcelona y Hospital de Sant Joan de Déu), Silvia Aguilera (ePAG advocate)
12 Juillet16hHCPWhat are the pitfalls and red flags of Relapsing Polychondriti (RP) to be considered by the General Practitioner / Health Care Professional?Laura Damian (County Emergency Clinical Hospital Cluj), Camelia Bucsa (ePAG advocate)